National Scleroderma Foundation

Our Mission The National Scleroderma Foundation’s mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Our vision is to be a relentless force in finding a cure and improving the lives of people affected by scleroderma.
Find Your Best Path

Where to Start

More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
Find What You Need

One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
Find Support

Share and learn from others, at different places in their journey, through ‘Living with Scleroderma Groups’ for adults, children, and those who care for them.
Find Resources

No matter what type of scleroderma or where you or your child are on your journey, the Scleroderma Foundation can help you find your best path.
Find a Scleroderma Center

Find the right specialists to make up your team. Locate designated scleroderma centers, specialists, clinical trials, studies, and get help navigating the healthcare system.
Connect Locally The Foundation can connect you with others living with scleroderma through our nationwide network of chapters, in addition to more than 100 support groups.
HOPE Line The National Scleroderma Foundation’s HOPE Line (800-722.HOPE/4673) is a free service offering support for people living with scleroderma, caregivers, families and the public. Anyone can contact the HOPE Line during the hours of (8:30am-5pm ET) to speak with a team member. Callers can leave a voicemail after hours. All inquiries will receive a response within 2 business days. You can also email us at support@scleroderma.org
Get Involved Find a Walk Near You Stepping Out to Cure Scleroderma walks give you a way to get involved and help advance the mission.
Join a Walk
Learn More about Scleroderma Learn about scleroderma, the facts, the latest research, and treatments through our Fact Sheet.
Fact Sheets
Support the Mission The need is great, and the path forward is challenging. You can help make a difference in the lives of people with scleroderma today by supporting our mission.
Donate Now
This is the default image
Featured News Read the latest news and information from the Foundation.
January 26, 2026 Puerto Rico Community Comes Together for First In-Person Scleroderma Education Event

On January 24, 2026, our Florida and Puerto Rico Chapter successfully hosted Scleroderma Insights, its first in-person scleroderma educational…
January 21, 2026 Champions for Change: Paid Time Off (PTO) Initiative

We’re proud to share that we have joined the Champions for Change – Paid Time Off (PTO) Initiative, a…
January 14, 2026 2023 Research Grant Recipient Maps Immune Cells in the Skin

Peter Morawski, PhD, is a 2023 National Scleroderma Foundation research grant recipient, and is on a quest to find…
January 6, 2026 Puerto Rican United Voices: A Support Group Becomes a Beacon of Solidarity 

In the scleroderma community, support groups are more than just a gathering – they are lifelines. They offer connection, understanding, and…
This is the default image
Join Us for a Foundation Event Upcoming Events

Events Search and Views Navigation

Event Views Navigation

Events

Today

  • Orange County Support Group (Hybrid)

    This support group meets at the Josephine-Louise Public Library in Walden, NY and offers a virtual option.  The library is inside of Walden's Municipal Building, and the community room is on the second floor. You need to enter the main door of the Municipal Building instead of the library's entrance to access the elevator.  Contact […]

  • Connecticut Scleroderma Support Group

    Virtual Event

    For more information, please email tristatechapter@scleroderma.org Use this link to register in advance: Meeting Registration - Zoom This group meets on the third Saturday every three months. Specific times are […]

  • LGBTQ+ Scleroderma Support Group

    LGBTQ+ Scleroderma Support Group
    Zoom Meeting link available after registration
    Virtual Event

    If you are interested in learning more, please email, LGBTQ@scleroderma.org, with questions. Click here to register in advance. A link to the meeting will be made available after registration.

This is the default image
Join Us for a Foundation Event Upcoming Events
September 16, 2025, 7:00 p.m. ET Bereavement Support Group
September 16, 2025, 7:00 p.m. ET Morphea/Localized Scleroderma Support Group
September 17, 2025, 6:30 p.m. CT West Metro Support Group (MN)
September 18, 2025, 6:00 p.m. ET Central North Carolina SSc Support Group
Research Initiatives

The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.

Research Funded by the Foundation