A new research highlight showcases how PCORnet® Studies are using the PCORnet infrastructure to conduct patient-centered pediatric research across therapeutic areas including nephrology, cardiology, and metabolic disorders. Pediatric patients across all 50 states from birth to age 20 represent more than 27% of the total population of patients served by PCORnet® Clinical Research Networks (CRNs), making research that promotes healthy children and youth a priority for the network.
Reflecting on his experience as the Principal Investigator for the Pediatric KIDney Stone (PKIDS) Care Improvement Network, Gregory Tasian said, “PKIDS at its core has turned around the way we conduct research in pediatric surgery. We turn to our patient and family partners to learn what are the questions we should be asking and what outcomes we should be measuring.”
The research highlight provides an overview of pediatric PCORnet® Studies that are generating real-world evidence to help patients and their caregivers make healthier choices and more informed healthcare decisions. The Pediatric PCORnet® Population Insights Report provides researchers with details about the capacity of the infrastructure of PCORnet to support national-scale pediatric research across a range of common and rare health conditions.
Researchers who partner with PCORnet have access to insights from high-quality health data from eight PCORnet® CRNs, engaged communities and Patient Partners, and research expertise. By leveraging PCORnet, researchers can access:
- Data from everyday healthcare encounters with more than 47 million people annually across the U.S., including nearly 13 million pediatric patients ages birth through 20 years old
- Proven, low-burden models for pragmatic research to minimize burden on participants
- Patient engagement resources that drive meaningful research and results
Ready to begin your next patient-centered pediatric study? Knock on the PCORnet® Front Door to get started.