Collaboration. Transparency. Urgency.
CURE SYNGAP1 is a global group of families committed to accelerating the science to cure SYNGAP1 & to supporting each other.
Learn more about SYNGAP1Newly Diagnosed? Click here!
Advocate for your child and our community! Rare Disease Week February 23-27 in Washington & Virtual!
Pre-register for future updates on the CURE SYNGAP1 Conference 2026 in Denver – cureSYNGAP1.org/Pre26
Upcoming Events & Webinars
April 25, 2026
May 28, 2026 - May 28, 2026
June 13, 2026 - June 13, 2026
December 3, 2026 - December 4, 2026
Newly Diagnosed?
Join our registry
Register with Citizen Health to collect as much de-identified group data for researchers to use. We need as many to register to improve the chances for successful clinical trials.
RegisterGet involved
The best way to help someone with SYNGAP1 is to help spread awareness and stay informed. Start by connecting with CURE SYNGAP1, holding a fundraiser, and becoming a volunteer.
ConnectNew families
If you're newly diagnosed or looking for the SYNGAP1 community, we have developed a Resource Guide with basic information as well as important tools for you and your doctor.
Learn more