Driving
CMT Research
with the
Patient’s Voice
With your help support love
nothing is impossible!
Drive Research
Drive Research
Turn your symptoms into science
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Join Team CMT
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Pledge Monthly
Start your Monthly Gift of $10 today or consider the many other ways to give!
Research CMT
Research CMT
HNF has been conducting patient-focused research dating back to 2007.
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Gift a Birthday
Celebrate your birthday with a purpose! Start a Birthday CMT Fundraiser.
2026 Clinical Trial Readiness Summit
April 16-18th
Turf Valley Resort
Ellicott City, MD
Welcome To The
Hereditary Neuropathy Foundation
Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support people living with CMT and their families with critical information to improve quality of life, and fund research that will lead to treatments and cures.
What is CMT?
Genetic Testing
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Pediatrics & CMT
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Join for notifications on events, campaigns, & news
About HNF
Founded in the early 2000’s, HNF developed the Therapeutic Research in Accelerated Discovery (TRIAD) as a collaborative effort with academia, government, and industry to develop treatments for CMT.
In accordance with the FDA’s patient-focused drug development guidance for enhancing the incorporation of the patient’s voice in medical product development and regulatory decision making, HNF has developed a regulatory strategy to support FDA Guidelines to engage with industry early on and assist with collecting and submitting robust and meaningful patient experience data, and other relevant information from patients and caregivers, such as identifying what is important to patients.
HNF is actively committed to increasing awareness and accurate diagnosis of CMT and providing patients and families with critical information to improve quality of life.
From Our Blog
LATEST
Allison Moore Receives Award for Community Impact in Research
Muscular Dystrophy Association’s Legacy Awards Honor Innovators in Clinical and Scientific Research, and Community Impact at the 2026 MDA Clinical & Scientific Conference in March MDA Legacy Award for Achievement in Clinical Research to honor Michio Hirano, MD,...
Biomarkers Can’t Wait
Webinar Announcement: Biomarkers Can’t Wait – Accelerating the Path to CMT Treatments Biomarkers are essential to developing effective treatments—but in Charcot–Marie–Tooth (CMT), the lack of validated biomarkers remains a major barrier to progress. Without reliable...
2026 Clinical Trial Readiness Summit
Join researchers, clinicians, patients, and families for the 2026 CMT Summit + Retreat - two transformative days where science meets self-care and community drives progress. Order of Events (Full Agenda Coming Soon) Thursday, April 16th: Wearable Study Thursday, April...
NMD Pharma: HNF TRIAD Partner Community Update on the SYNAPSE-CMT (NMD670) Clinical Trial
NMD Pharma: HNF TRIAD Partner Community Update on the SYNAPSE-CMT (NMD670) Clinical Trial NMD Pharma, a proud HNF TRiAD Partner, has announced the successful completion of patient enrollment in their SYNAPSE-CMT clinical trial, marking a major milestone in the...
HNF Partners with MDA to Empower the CMT Community
HNF Partners with MDA for CMT Series The Hereditary Neuropathy Foundation (HNF) was honored to collaborate with the Muscular Dystrophy Association (MDA) for a special MDA Learning Series dedicated to CMT — and it’s now available to watch on demand. This two-day...
Passion for Movement. Power for Change.
On Sunday, November 2, 2025, NMD Pharma will lace up their running shoes and take on the TCS New York City Marathon—not just for the challenge, but for the 3 million people worldwide living with Charcot-Marie-Tooth disease (CMT). As an HNF TRIAD partner, NMD Pharma is...
The Nerve to Cure Event, Columbia Missouri
Join us Saturday, October 4th from 12pm – 8pm October 4, 2025
The Nerve to Cure
CMT Social + Science Day with Evening Fundraiser Dinner
Brews & Bingo For CMT
Join us on Thursday, Nov. 13th at 6pm, Rec Room by Conshohocken Brewing, 230 Bridge St, Phoenixville, PA 19460
Featured
Allison Moore Receives Award for Community Impact in Research
Muscular Dystrophy Association’s Legacy Awards Honor Innovators in Clinical and Scientific Research, and Community Impact at the 2026 MDA Clinical & Scientific Conference in March MDA Legacy Award for Achievement in Clinical Research to honor Michio Hirano, MD,...
2026 Clinical Trial Readiness Summit
Join researchers, clinicians, patients, and families for the 2026 CMT Summit + Retreat - two transformative days where science meets self-care and community drives progress. Order of Events (Full Agenda Coming Soon) Thursday, April 16th: Wearable Study Thursday, April...
HNF Partners with MDA to Empower the CMT Community
HNF Partners with MDA for CMT Series The Hereditary Neuropathy Foundation (HNF) was honored to collaborate with the Muscular Dystrophy Association (MDA) for a special MDA Learning Series dedicated to CMT — and it’s now available to watch on demand. This two-day...
Passion for Movement. Power for Change.
On Sunday, November 2, 2025, NMD Pharma will lace up their running shoes and take on the TCS New York City Marathon—not just for the challenge, but for the 3 million people worldwide living with Charcot-Marie-Tooth disease (CMT). As an HNF TRIAD partner, NMD Pharma is...
Featured Webinars
CMT Summit Patient Voices
At the 2025 CMT Summit and Retreat in Nashville, the Hereditary Neuropathy Foundation (HNF) placed patient and care partner voices front and center. Through powerful firsthand stories shared on stage and in intimate breakout sessions, attendees experienced the raw...
Webinar: Making Sense & Science of CMT Symptoms
How do we know if our symptoms are Charcot-Marie-Tooth Disease related, and how can we drive research to better answer this question?
CMT THRIVE Webinar – Cannabis & Neuropathy Webinar
Cannabis can be a safe and effective tool to reduce symptoms of neuropathy and improve patient quality of life.
Active Hands
Hear from Rob Smith, Inventor and Director of Active Hands and learn about these life-impacting products designed especially for people living with reduced hand function.
UPCOMING EVENTS
Biomarkers Can’t Wait
Webinar Announcement: Biomarkers Can’t Wait – Accelerating the Path to CMT Treatments Biomarkers are essential to developing effective treatments—but in Charcot–Marie–Tooth (CMT), the lack of validated biomarkers remains a major barrier to progress. Without reliable...
2026 Clinical Trial Readiness Summit
Join researchers, clinicians, patients, and families for the 2026 CMT Summit + Retreat - two transformative days where science meets self-care and community drives progress. Order of Events (Full Agenda Coming Soon) Thursday, April 16th: Wearable Study Thursday, April...
CMT Biobank: Participate today!
Join us at a CMT Roadshow to donate blood.