The goal of the study is to learn more about how certain abilities (e.g. memory), certain types of experiences (e.g. interactions with family) and biology affect language abilities in adulthood for both males and females with Fragile X syndrome. We are also interested in understanding how these factors and language/literacy skills affect the abilities of these young adults to function independently. Such information will help us suggest ways to improve teaching and therapy techniques for these individuals.

 

If you are interested in participating in this study, you and your son or daughter will be asked to participate in four assessment visits over a three-year period. Two visits will be completed at one of our study sites and two will be completed from home. During these visits some assessments will be done directly with your son/daughter, some assessments will be done directly with you, and we will ask you to provide some additional information about your son/daughter. Travel costs will be reimbursed, and families will receive a $200 honorarium for completing all parts of the study.

 

If you would like to learn more about this study, please call the study coordinator, Florencia Pezzimenti, at 615-322-2943 or email transitions@vumc.org.